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EDS Testimonials

Ashleigh Harley benefits from using a DMO® Suit

Meet Ashleigh

Ashleigh Harley - award-winning film-maker, writer and musician who tries not to let Ehlers-Danlos Syndrome get in her way.

Ashleigh Harley contacted DM Orthotics because she didn’t want Ehlers-Danlos Syndrome (EDS), a genetic condition that can be chronically painful and cause joints to pop out of their sockets, to get in the way of her love of horse riding.

The custom-made DMO® Suit we created is full length but sleeveless to ensure she has freedom of movement in her arms for riding.

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EDS patient Gill Nicholls

Meet Gill

Gill Nicholls - patient with Ehlers-Danlos Syndrome

Gill Nicholls has been using DMO® products for over four years, she suffers from a rare condition called Ehlers-Danlos Syndrome (EDS) and has the hypermobile type.

The condition means her joints are loose and unstable which can lead to painful dislocations all over her body.  The custom-made DMO® Suit and Dorsiflex Sock have reduced the pain and dislocations Gill experiences allowing her to live a more independent life and most importantly keeping her walking and out of a wheelchair.

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Charlotte

Meet Charlotte

Charlotte - patient with Ehlers-Danlos Syndrome

Charlotte is one of many EDS patients to benefit from dynamic movement orthoses and has recently started sharing her journey on Instagram in the hope she can help others facing similar battles.

“I am 17 years old and I have Ehlers Danlos Syndrome. My physio suggested wearing orthotics to provide support. I wear the socks, leggings, vest and right glove almost everyday.

This compression clothing has allowed me to do so much more with my life. Not only has it provided support, it has helped reduce my fatigue and improved my POTS (Postural Orthostatic Tachycardia Syndrome).”

Combining my orthotics with physio has allowed me to start to run, which is something I never thought I’d get to do again. Thank you DM Orthotics. You have helped to give me a better life.”

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DSC_0378

Meet Alex

A testimonial about our DMO leggings

Alex has classic Ehlers Danlos Syndrome which causes his body’s connectives tissue and its collagen to become fragile and stretchy (https://www.ehlers-danlos.org/what-is-eds/).

Before wearing his DMO leggings Alex would be in a tremendous amount of pain causing him to cry out in the night and quickly become unsettled. His condition also caused him to hyper extend his lower body which could often cause him to lose his balance on one leg as well as on some days, two.

Since Pam, our clinical specialist, prescribed Alex with his DMO leggings Jacqui has reported that he rarely complains of lower limb pain and often experiences the benefits of his orthoses even when he isn’t wearing them, due to the carry over effect from the strategic panelling and biomechanical reinforcement.

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hannah

Meet Hannah

DM Orthotics remove need for medication for Ehlers Danlos patient

Hannah Ensor has Hypermobility Type Ehlers Danlos Syndrome (EDS) and Postural Orthostatic Tachycardia Syndrome (POTS). She is a cartoonist and runs her own company, Stickman Communications. A bright sense of humour and tenacious ambition have seen her turn her stickman characters, used to communicate how she was feeling during a time in hospital, into a unique and creative business helping people worldwide better understand disability.

Read on to hear how Hannah describes her experience of using Dynamic Movement Orthoses and how she no longer needs medication for her conditions.

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