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EDS Testimonials

Charlotte

Meet Charlotte

Charlotte - patient with Ehlers-Danlos Syndrome

Charlotte is one of many EDS patients to benefit from dynamic movement orthoses and has recently started sharing her journey on Instagram in the hope she can help others facing similar battles.

“I am 17 years old and I have Ehlers Danlos Syndrome. My physio suggested wearing orthotics to provide support. I wear the socks, leggings, vest and right glove almost everyday.

This compression clothing has allowed me to do so much more with my life. Not only has it provided support, it has helped reduce my fatigue and improved my POTS (Postural Orthostatic Tachycardia Syndrome).”

Combining my orthotics with physio has allowed me to start to run, which is something I never thought I’d get to do again. Thank you DM Orthotics. You have helped to give me a better life.”

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Meet Alex

A testimonial about our DMO leggings

Alex has classic Ehlers Danlos Syndrome which causes his body’s connectives tissue and its collagen to become fragile and stretchy (https://www.ehlers-danlos.org/what-is-eds/).

Before wearing his DMO leggings Alex would be in a tremendous amount of pain causing him to cry out in the night and quickly become unsettled. His condition also caused him to hyper extend his lower body which could often cause him to lose his balance on one leg as well as on some days, two.

Since Pam, our clinical specialist, prescribed Alex with his DMO leggings Jacqui has reported that he rarely complains of lower limb pain and often experiences the benefits of his orthoses even when he isn’t wearing them, due to the carry over effect from the strategic panelling and biomechanical reinforcement.

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hannah

Meet Hannah

DM Orthotics remove need for medication for Ehlers Danlos patient

Hannah Ensor has Hypermobility Type Ehlers Danlos Syndrome (EDS) and Postural Orthostatic Tachycardia Syndrome (POTS). She is a cartoonist and runs her own company, Stickman Communications. A bright sense of humour and tenacious ambition have seen her turn her stickman characters, used to communicate how she was feeling during a time in hospital, into a unique and creative business helping people worldwide better understand disability.

Read on to hear how Hannah describes her experience of using Dynamic Movement Orthoses and how she no longer needs medication for her conditions.

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Meet Gill

Gill Nicholls - patient with Ehlers-Danlos Syndrome

“I am 36 years old and  suffer from a rare condition called Ehlers-Danlos Syndrome. I have the hypermobile type. Which means I have loose, unstable joints that lead to dislocations all over my body. I am in constant pain and unable to work and lead a normal life.  I live with my parents my Mother being my main carer. I contacted DMO, after consultations and exact measurements being taken I purchased a full body suit and support socks from them. I am now able to function day to day since wearing my suit, which I wear day and night. My pain has reduced and so have my dislocations. As the EDS now affects my feet I am wearing my socks during the day and these have kept me walking and out of a wheelchair. I highly recommend DMO support”.

Gill Nicholls, DMO patient with Ehlers-Danlos Syndrome.

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