Ashleigh’s Story

Ashleigh's Story - Patient with Ehlers-Danlos Syndromes

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Meet Ashleigh

Ashleigh Harley – award-winning film-maker, writer and musician who tries not to let Ehlers-Danlos Syndrome get in her way.

Ashleigh Harley contacted DM Orthotics because she didn’t want Ehlers-Danlos Syndrome (EDS), a genetic condition that can be chronically painful and cause joints to pop out of their sockets, to get in the way of her love of horse riding.

The custom-made DMO® Suit we created is full length but sleeveless to ensure she has freedom of movement in her arms for riding.

Ashleigh Harley is an award-winning film-maker, budding writer and musician.  She also loves horse riding and would like to make show jumping a Paralympic sport so she can fulfil her dream of competing at that level herself.

At the age of 12 Ashleigh was diagnosed with Ehlers-Danlos Syndrome (EDS), a genetic condition that can be chronically painful and cause joints to pop out of their sockets.

Ashleigh Harley dmo patient

Ashleigh came to DM Orthotics for a made-to-measure suit, she says

They made me a full body suit that has been nothing short of life-changing, it stops my joints dislocating, stabilises my blood pressure so I don’t pass out and realigns the curvature in my spine caused by scoliosis.

Watch our video to find out more about how a DMO® Suit was specially made to enable Ashleigh to live her life more easily and continue to enjoy riding.  The suit is full length but sleeveless to ensure she has freedom of movement in her arms for riding.