Earlier this week, I attended a Multiple Sclerosis (MS) conference hosted by the MS Trust. The conference covered current research, clinical practices, and patient experiences. Additionally, there were many talks from experts from various fields, each sharing valuable insights into MS research, functional neurological disorders, patient autonomy, and mental capacity assessments.

Exploring Research in a Specialist MS Role

The conference began with a session on Research in a Specialist MS Role – Channelling Curiosity and Maximising Opportunities, led by Dr. Hilary Gunn (Plymouth University), Amanda Andrews (Birmingham City University), Dan Kuchcharczyk (Royal Wolverhampton NHS Trust), and Angela Davies Smith (MS Trust).This encouraged clinicians to reflect on their existing work and consider how it could form a baseline for different levels of research. The speakers emphasised the importance of collaboration, discussion, and networking to enhance research in MS care.

Functional Neurological Disorders: Diagnosis, Symptoms, and Rehabilitation

Dr. Glenn Nielson (St. George’s University, London) led a session on Functional Neurological Disorders, exploring the overlap between functional and movement disorders in MS. This session delved deeply into the challenges of diagnosing and managing these conditions, highlighting the need for targeted rehabilitation strategies.

Following this, Dr. Gogem Topcu (University of Nottingham) discussed Adjustment to Diagnosis and Transitioning to Progressive MS: The Patient and Carer Journey. This session addressed the emotional and practical challenges of navigating an MS diagnosis and the evolving needs of patients as the disease progresses.

Falls Prevention in MS: Is It Possible?

Dr. Hilary Gunn returned to present on Falls Prevention in MS, sharing research on the frequency of falls in the MS community and potential rehabilitation strategies. The session sparked lively discussions on how best to support patients in reducing fall risks and maintaining mobility.

Patient Autonomy in Advanced MS

One of the most thought-provoking sessions focused on Patient Autonomy in Advanced MS, led by Jon Blair CBE (The Jon Blair Film Company, London), Lord John Monks (House of Lords), and Dr. Eli Silber (King’s College London). The discussion explored the ethical and emotional aspects of decision-making in advanced MS, highlighting the importance of ensuring patients retain as much control over their lives as possible.

Mental Capacity Assessments: A Practical Process

Tim Farmer, an independent Mental Capacity Assessor and Consultant, presented a session on Mental Capacity Assessments. He outlined a structured approach to assessing an individual’s capacity to make their own decisions, ensuring that professionals follow a rigorous and ethical process in line with legal frameworks.

My Clinical Poster

The Clinical poster presented a single case study of a patient with MS, who experienced improvements in her gait and confidence whilst using the dorsiflex sock. It improved her sense of awareness of the leg and foot, enabling her to activate the muscles in a timely manner. Her foot drop and mobility, stability and confidence were improved.

The poster sparked engaging conversations amongst therapists who were intrigued by the potential of the device and the other garments that we manufacture. In turn discussions about other similar patients led to a collaborative exchange of ideas regarding treatments to manage MS and other neurological challenges.

If you would like to see my poster, then click here.

Final Thoughts

This conference provided a wealth of knowledge and discussion points for MS researchers, clinicians, and advocates. The emphasis on collaboration, patient-centered care, and the latest research advancements reaffirmed the importance of continuous learning and innovation in MS care.